Claire Baxter
Sally Philips’s recent documentary about parenting a child with Down’s Syndrome explored the ethics of antenatal testing, but I couldn’t help being drawn to the back story; the families’ experiences of public services.
Earlier this year I managed a small charity, School for Parents, on an interim basis. It provides weekly classes for children with disabilities, teaching groups the skills others take for granted such as moving, communicating and eating. During this time Dr Anne Emerson of the University of Nottingham conducted research to understand the experiences of the parents. This provided a valuable opportunity to explore how families we worked with encountered public policy and services, and to appreciate the role university research can play.
What did I learn?